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By Sean Graham
“Before I had my two children, I had a miscarriage.” This is how Alicia Yamin starts her new book Power, Suffering, and the Struggle for Dignity: Human Rights Frameworks for Health and Why They Matter. By introducing the book in such a personal manner, Yamin, the Policy Director of the Francois-Xavier Bagnoud Center for Health and Human Rights at Harvard University, prepares the reader for what is to follow. In interweaving personal stories, Yamin demonstrates how health should be situated as a human right and, in doing so, represents a major turning point in the struggle for dignity.
The great challenge in studying broad concepts in matters with very real world ramifications is that the writing can feel distant and cold. To alleviate this concern, Yamin incorporates case studies from her vast experience working in the field. By humanizing these seemingly abstract issues, Yamin is not only able to hook the reader but also establishes a narrative voice that guides the reader through the book.
At its best, Power, Suffering, and the Struggle for Dignity attacks the preconceptions and assumptions that have inhibited the implementation of a human rights framework for health. For instance, in the introduction Yamin cites the too-often-used phrase “there but the grace of God go I” in discussing a general apathy towards the issues on the part of those in privileged positions. By casting the inequalities in health and healthcare to divine providence, the real-world human decisions that have fostered and expanded inequality are easily dismissed or ignored. As a result, too many people unnecessarily suffer from indignity without intervention.
These inequalities are often the result of discrimination based on race, gender, and poverty – issues that are beyond the control of those that don’t have access to health. Many of Yamin’s examples are related to maternal health and mortality. From the sexual, physical, and emotional abuse perpetrated by the men in her life to losing multiple children to AIDS and malnourishment, Yamin outlines how one particular woman had been denied agency throughout her life for no other reason than she lived in an impoverished region. The decisions that led to that poverty were well beyond her control – often made on the other side of the world – and yet we too often believe the myth that we all reap what we sow.
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